Brigham Temple Openhouse

We went to the Brigham Temple open house yesterday. It is so beautiful inside and out! Teydon did really good he got a little bored but was entertained by the ropes, stairs, and trying to climb on things. It's hard for a 100% boy to be reverent and calm for 45 min. He was glad to finally get outside and run off some energy. His favorite part was riding the bus to and from the temple and the fountain at the temple entrance. We can't wait until we can go through a session there. We are so grateful for so many temples so close to us that we can go to as often as we want and feel close to our heavenly father.

FLAMING GORGE!!

The Gorgeous Gorge!

 

 

Hanging on the boat!

 

Tubing

 

Cliff Jumping

Wake boarding and Skiing

 

Dan and Steve tubing! Playing bumper tubes!

 

Baby Bentley's First Gorge Trip!!

Hanging on the beach!

My birthday room decorations!!

 

The past 2 years we have gone to Flaming Gorge for my birthday! We went on Wed. and came home Sun. This year we had more join us, there were 20 of us total counting little Bentley, and we all loved every minute of it! Can't wait until next year!! We bought a camper this year and have enjoyed spending quality family time in it. We almost sold it cause Teydon didnt sleep very good in it but this weekend we tried a couple different spots and found his good spot! We all got more sleep once we made his bed on the couch and put the rocking chair up against it to prevent falling out of bed, which he did when we tried his bed on the kitchen table bed :). We are hoping with having the trailer it will help get us out and spending more family time together! I want to THANK everyone for coming and celebrating my special day with me!!! I love you all so much!!! Thanks for making me feel so special!! 

STOMP the MUD out of CHILD ABUSE!

ARS sponsored Stomp the mud out of child abuse, a race in the mud to raise money for the Child and Family Support Center. It was a blast running in it! My mom came down and watched Teydon for us so we could run in it! They had an adult coarse and a child coarse Teyd had a blast running in the water!! I made Dan stay with me the whole time since he was the reason I got roped into rolling around in the mud, it was fun to do it together and push and support each other along the way! Im not sure how much they were able to raise but I think it was a big hit! This was their 1st year doing it.

Cache County Fair!

The fair was Aug. 9-11 so we took Teyd for some fun! He loved riding/sittin on the tractors! He absolutely loved riding the train, he was not very happy when we ran out of money and he couldnt ride anymore. That little boy has captured my heart, I love all his facial expressions! He is always bringing so  much joy and happiness into our lives! He got to go twice but the second time I wasnt able to go cause I was sick :( but him and daddy got to go have some father son time!

Stone Reservoir

For my brothers 21st birthday we met, in the middle, at Stone Reservoir to celebrate. His birthday is July 30, we celebrated on Aug. 4th! We camped and boated! It was so nice to go and do something fun and relaxing after the very stressful July we had. Thanks for being born buddy so that we had a reason to celebrate!! Happy Birthday!! Love ya tons!! We celebrated with My mom (Becky), Bro Colby, his girlfriend Brianne, and her 2 girls Lily and Sage! It was a blast!! That Sunday we went to church in Snowville, my best friend Sabrina blessed their baby boy, Bentley! It was fun to go back to my old ward and see some familiar faces! It was so awesome to be a part of the babies blessing day!
                               

Seizure #4

It was 6:55 in the morning, Teydon had slept all through the night. Dan had gotten up to go to the bathroom and soon after he laid back down we heard "the scream", we went running in his room and sure enough he was having a seizure, we would recognize that scream anywhere. When we got in there he was stiff, Dan ran to the room to grab his phone and by the time he came back he was convulsing. It lasted 1 min 30 secs. Though this one was a little easier than the first 3 it still is so hard to see him go through them. He went 2 weeks without having one! Ya! Hoping they keep getting further and further apart. We knew that it was possible for him to still have some, hoping the natural drops will stop them completely. The only way, right now, to get them to stop is to put him on a drug and we still are not ready to do that, we are going to give the natural drops a chance to work. Please continue to keep us in your prayers for we are not out of the woods yet. Thank you so much for all you support!

Nutritionist, MRI and EEG results!!

We scheduled Teydon and MRI for today and on our way down, we were in Roy when his seizure Dr. (Dr. Lloyd) finally called us back with the EEG test results. He had been trying to get in contact with the head of Neurology doctor to see what his opinion was on the abnormal results. Then the Dr. had gone on vacation so Dr. Lloyd had a hard time getting in touch with him. Wish he would've just called and told me that, I wouldve of been just fine knowing he was at least working on it, it would have been a lot less stressful on me.  I'm going to try my best to describe the results. They call it Generalized Seizures, they are the most common and non harmful, so the best seizures to have if your going to have them. His seizures are affecting the whole brain not just one part which is good, cause if it's only affecting one part of his brain it means serious problems. He said that 70% of seizures have no known cause and it is not abnormal for them to just start all of a sudden. They see them start when people are 0-2, at 5 yrs, adolecents, and 60 yrs old. These seizures are ones that he can grow out of. We have decided at this time and the dr. agrees that we won't start him on any medications at this time, we're going to keep trying what we are doing, more sleep, keeping him hydrated, and his natural drops. If we can not get them to stop we will then think about putting him on a medication for them. We are going to give the natural drops a chance to work and rearranging his schedule and hope that will control them. Since it had taken him so long to get back in touch with us and we couldn't get in contact with him, wee worked with Teyds pediatrician and got an MRI scheduled, that's what his ped said they usually like to do along with an EEG. We scheduled it for today so when he called us and we were already on our way there we asked him if we needed it. Dr. Lloyd told us that usually with these type of test results he doesn't usually do an MRI but said it was up to us if we still wanted to do one. So we figured since we were pretty much there and already had it scheduled we might as well go through with it. It was more for our peace of mind than anything, we want to make sure we have all our bases covered and nothing will have been missed. 

MRI: It is so hard being a parent sometimes and it was so hard to see our little boy life less (or a nicer term sadated) laying, head strapped down on a table, being moved under a huge tunnel. We are really hoping this is the last test we have to do, I don't know that we can handle putting our little guy through anymore. I know that it is way harder on us than it is him, so I don't know if I can handle it 
for my sake not his :). He's a tough little guy and such an awesome sport. He is getting pretty sick of going to the dr. and getting tests done. Putting the IV in was not very fun either, we had to pin him sitting on Dans lap and try to keep him calm, with his IV hand tucked under Dans arm, which was in excrusuating pain, for a two year old anyways. It was quiete the little pretzel we had him in. Five minutes after it was in he kept looking for a Dr. to take it out, he was done with it. He did get like 4 prizes for being such a good boy, 2 cars, bubbles, and play dough. They left the prize box in our room so he continued to get prizes our of it. I figured we'll end up paying them enough he can have 4 little prizes. Once he was sedated and in the MRI we were able to go grab some lunch, the test took about 35 min. He was still asleep when we got there, we waited for about 40 min then they woke him up. They tried being nice about it for about 15 seconds then they just forced him to sit up and then shoved a popsicle in his mouth, which did the trick. He was still a little out of it but did good he wasn't cranky or anything, nothing like his father. We waited about 15 min to make sure he came out of it ok then we were sent on our way. He ate a couple crackers then crashed by the time we were out of SLC and slept until we got out of Sardine Canyon. I am so proud of my little boy for how strong he has been through this whole thing! Everything we go through I am reminded of how MUCH I LOVE our little boy!!! Even though medical stuff is super stressful and taking years off my life I am so grateful to be his parent and to have him as my son!! He has captured so many people's hearts, 
everyone who meets him falls in love with them!! We are so blessed with such an awesome little boy!! 

Nutritionist:  I took him to his drop check up on Tues. the 7th. His body is getting balanced out and can now begin the healing process!! His drops were lowered but then he was given 2 other drops to take. His lithium and his calcium are low so taking drops to get them back up. I was thinking I'm surprised his calcium is low cause he drinks a lot of milk but then got thinking we've been pushing more water so he hasn't been drinking as much milk. We go again in two weeks to check his drops and hoping we have more good news! His nutritionist was very happy with his progress and though she says we may experience more seizures but that he is on the right track to not having any at all. Keeping our fingers crossed that we can do this naturally, and that a year from know this will all be a memory and a learning experience.

Thank you for all of your love, prayers, support, and concerns for our little family. Hoping we have been through the worst. And hoping we can return the favor when you are in need! We love you all so much!